The Planning Process of Caregiver Support Groups

Thursday, 4:00pm to 6:00pm
Seabright
Poster 2
There are currently 5.4 million people living with Alzheimer's disease and an estimated one million people in the United States with aphasia. The people who care for a person with AD or aphasia experience high levels of stress related to emotions, nursing home placement, and end-of-life care. They also reported that the physical stress of caring for a person with AD or aphasia is high and are at a higher risk for other chronic diseases. Caregiver burden and stress are significant factors in the recovery of stroke survivors and quality of life of a person with Alzheimer's disease. The purpose of this study is to identify any trends in the planning process of caregiver support groups and to identify strengths and weaknesses of these support groups. Identifying trends in this experience may provide useful information to improve the planning, running, and assessing of caregiver support groups. This ethnographic study consisted of nine participants, four stroke and five dementia caregiver support group facilitators, who were interviewed on an individual basis using interview questions created by the principal investigator. Identified trends included basing the group planning on the members' needs, facilitator training programs, and utilizing indirect goals. Strengths of caregiver support groups included providing members with emotional support, providing members with hope, and maintaining the relationship with the members' loved ones. Further research should be conducted with a larger sample size and to develop a group facilitator training program for stroke and aphasia caregiver support groups.
Track: 
Adult